Mom to Hayden Lee

Fairbanks, Alaska

August 1, 2012

My husband and I knew each other for 19 days before we married. That’s all it took to know he was the one. August 1, 2011, was the day we met and who knew exactly one year later we would be giving birth to the lifeless son we had longed for.

On January 28, 2011, I was ecstatic! I was pregnant! I have polycystic ovarian syndrome, diabetes and high blood pressure, I thought it would be a long and hard process but it wasn’t! Like any other couple who was expecting a child, we were so excited for the anatomy scan. [Read more…]


Mom to Liam Maximilian
January 3rd, 2011
Anchorage, Alaska

My husband and I had been trying for 2 years and finally after our second IUI we were pregnant. We were so excited that finally the stress of fighting infertility was gone. I am a worrier though so when asked about getting the prescreen done, to check for birth defects, I had to do it. This resulted in more worrying then since the results showed us that our baby had a 1 in 30 chance of having a neural tube defect. I tried to stay optimistic, that there was still a chance my baby was perfectly healthy. 
At our 20 week ultrasound to find out the sex of our baby it was discovered that not only was I having a little boy but also that he had hydrocephalus caused from Spina Bifida and we needed to go see a Perinatologist to find out the exact location and extent of his back lesion. After seeing the Perinatologist we learned that my poor Liam had a very bad case of Myelomeningocele and showing all of the classic signs. We also learned that day that there at been a research study going on called the “MOMS study” that was comparing 200 babies, half of which will receive fetal surgery to correct the spina bifida before more damage is done and after the baby is born which is the way it is commonly done. Doctors had brought up abortion to us, but that was not an option, I was already way to in love with my little Liam. This MOMS study sounded like an incredible option though, to have a chance at giving our little boy a chance at a better life.  The day we called about the study we found out it had just ended the week prior due to efficacy but they were going to allow 10 moms to electively get the fetal surgery if they passed all of the tests needed to do it. This news actually made us even happier because we knew now that the fetal surgery had proven to be helping these babies and since we wouldn’t be in the study we got to choose to get the fetal surgery, whereas in the study it was randomized who got which surgery. By this point we were at 23 weeks and the requirements to have the fetal surgery said it needed to be done by 25 weeks and 6 days. Not much time to get a lot done, especially since it was the holidays. I got an amniocentesis on a Monday and when the results came back that Wednesday that they were good I started to make plans to go to San Francisco where the surgery would be. We were told that if my baby passed the rest of the tests, which included an MRI, ultrasound, and echocardiogram that we would have to be prepared to stay in San Francisco until he was delivered by c-section at 38 weeks. I had already planned to go home and see my family for Christmas, and although it was still early in my pregnancy, we had a baby shower. How grateful I am now that my baby got a baby shower. 

[Read more…]

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