Elyse

Mom to Emma Kate

Born still September 26, 2013

Richardson, TX

 Emma Kate is our first child. We were so unaware, joking around about guessing the gender as we went into our 1st trimester screening. We learned that day that something was very wrong and went straight to another specialist to have a CVS Test performed. We quickly learned that our precious girl had Turner Syndrome, a chromosomal condition that is not hereditary. Her DNA was just missing a puzzle piece. [Read more...]

Rachel

Mom to Gracelyn, “Gracie”

Born still February 1, 2014

Allen, Texas 

I was 18 weeks pregnant when my daughter was diagnosed with Turner’s Syndrome (TS). For those of you who are unfamiliar with TS it’s the missing of all or part of the second X chromosome. My daughter also had a large Cystic Hygroma which measured 40 mm and Fetal Hydrops. The Maternal-Fetal Specialist told my husband and I that “with the combination of Cystic Hygroma coupled with Fetal Hydrops poses an extremely poor prognosis with the risk for fetal demise approaching nearly 100%.”  We were told that we would lose our baby within the next 4 weeks. Just minutes before we found out that we were expecting a little girl, moments later we find out that she would likely die. Our hearts were broken. [Read more...]

Alesha

Mom to Baby Staley- Morgan

Born still August 23, 2012

Buckhorn, Kentucky

I was 19 weeks pregnant and had found out I was carrying an unhealthy baby and the baby would more than likely lose its fetal heartbeat within the next few weeks or month. I had gone in for a routine ultrasound to find out the sex of the baby, but instead found out that the baby had a massive cyst and was gathering fluid around its heart. I was in complete shock, which was supposed to be a day of joy not sadness. I was lying on the bed during the ultrasound while my doctor was telling me all the horrible news. In complete shock, I instantly started praying and asking God to remove the cyst and make my baby healthy. My OB doctor said the baby more than likely had Turners Syndrome, a disease more common in girls. We had trouble finding out the sex because we couldn’t see much of the baby because of all the cysts. I was very thankful I had a few family members there with me during this time. They were all very excited as well as me about getting to find out the sex of the baby. [Read more...]

Kara Masi

Mom to Filomena Lucille Masi

Stillborn on March 10th, 2011 at 24 weeks and 3 days

Newark, Delaware

Ever since I was little, I knew I’d always have a house full of children. [Read more...]

Sarah

Mom to Ryleigh Jayne

Born at 14 weeks 6 days on April 24th, 2006

England, UK

I found out I was pregnant with Ryleigh on Sunday 5th February 2006 in Mcdonalds toilets – I remember the time, it was 11:30am. Me and Stuart had been trying for a baby since August 2005, we were both sure that the test would come back negative and very shocked but happy when it came back positive. When I came out of the toilets Stuart could tell just by the big grin on my face and then i passed him the test and he had a big grin on his face. I was so shocked that I could not stop shaking and could not eat my Mcdonalds as I felt too sick with mixed emotions. After Mcdonalds we went to a shop and bought two little baby grows for our growing bean and some mittens, we put them in our baby box once we arrived back at mine. [Read more...]

Yaneri
Mom to Arianna Naomi Foster
December 14th, 2010
Baltimore, Maryland
Arianna had Turner Syndrome. Not full blown Turner Syndrome, but Mosaic Turner Syndrome (45x 47xxx). Doctors called it sporadic. Doctors said it’s rare. Called it an “error” in cell division. Happens in 1 out of 2500 births. That’s a .0004% chance of happening…and it happened to me. I am the statistic. I will never look at probability the same ever again.

[Read more...]

Aimee
Mom to Charlotte Jean
Born Still on January 8, 2011
Jamestown, Ohio
 
My story starts like many others. I fell in love with my soul mate and best friend, Peter. We met in college and married in August 2006 after I graduated. We somehow, only God knows how, ended up living and settling down in the middle of no where Ohio. God has so richly blessed us in our 4 years of marriage and we were ready to add to our family.

[Read more...]


Vanessa
Mom to Baby Maes #1 – missed miscarriage July 16, 2009 at 15 weeks
Baby girl Maes- missed miscarriage March 11, 2010 at 10 weeks
and Baby Maes #2- Chemical pregnancy August 16,2010 at 4 weeks
Stockton, CA

In spring of 2009 after 7 months of TTC my husband and I were finally blessed with a baby. We were elated to be expecting our first baby. We knew pregnancy would be complicated due to my preexisting diabetes. My OB was on top of it and worked hard getting my insurance to approve a state funded program for pregnant diabetics to control my blood sugars as well as diet.

The pregnancy progressed fine. At 6 weeks we saw our baby heartbeat flickering away. At 9 weeks we saw our baby bouncing all over as we had an ultrasound. The baby was measuring a little small, but my OB said there were no worries. I got into the Sweet Success program and was immediately started on insulin injections and met with the nutritionist to set up my diet plan. In the meantime I was awaiting approval from my insurance to see the perinatologist. I started my insulin and over the next couple of weeks my sugars were under control.

On July 14, 2009 at 15 weeks I went to the perinatologist and have a level 2 ultrasound. I was excited that maybe we would see the sex of the baby. My husband couldn’t get off of work but he told me to find out the sex if they were able and bring home pictures for him. As they put the probe on my belly I knew instantly something wasn’t right.

[Read more...]

The Beginning ~ Stories of Hope

Faces of Loss, Faces of Hope has connected us to one another in amazing and intimate ways.  Loss has a FACE…shouldn’t HOPE? 
Hope is often what we loose when a baby dies.  It isn’t supposed to happen, not in this advanced time of medicine and technology . . . but as we all know from personal first hand experience, it does. 
The work of grief is hard ~ it never really ends, but is rather endured as time marches eternally on.  Sometimes though, something special can come from the devastation.  Sometimes, even the smallest stride is taken when a person chooses to make a change for either personal or greater good after the loss of a baby.  Weather it is a personal goal or triumph, perhaps something a bit larger or more global ~ we want to know about it! 
Faces of Loss, Faces of Hope is boldly taking the next step with a weekly feature spotlighting Hope.  You now can share how you’ve chosen to embrace Hope and mold it into something that inspires others.  No matter what your story is, we would like to hear it.  Hope can take on any form and we want to feature those who have found Hope in the face of Loss.  You can be a face of HOPE!
The pain doesn’t end, but hope can still be found.

Please consider submitting your Face of Hope story here (a few of you already have, and those will be posted shortly!).  Sharing your experience can make a difference.

[Read more...]

Ashley
Mom to Rory Mae, July 27, 2010
Seattle, WA
 
My husband and I had known we’d wanted kids, many kids if we could have them. Almost three months to the day before our wedding, I discovered I was pregnant. Shock turned to fear which quickly turned to joy and excitement, anticipation, thrill. As time passed we planned, budgeted, announced to a handful of friends and family that I was expecting. We’d planned a natural birth and I was being watched over by a midwife, independent from a hospital. I didn’t have many pregnancy symptoms and I was thankful for it.
At exactly 12 weeks, just four days before the wedding, I trekked over to see the midwife, and I was especially excited because we were going to look for the heartbeat of my little baby that day. As soon as I sat down in the waiting area, a feeling of dread washed over me. Usually optimistic about the pregnancy and the baby, I was suddenly overcome with the feeling that something was amiss. We sat in the room and chatted about how I was feeling, my weight, my diet and finally we laid me down to look for the heartbeat. My midwife had a lot of trouble finding anything, and attributed it to the baby being behind my public bone but she ordered me to go over to the affiliated hospital to have a viability scan done.
 
The feeling of awfulness grew, and I only wanted my husband there with me. I knew what was about to happen couldn’t have been good. My sonographer was extremely quiet, barely muttering anything to me. I was relieved to see a heartbeat on the screen but I could tell by her lack of chatter something was wrong. She called in a supervisor to help her measure the baby’s organs and thrust a printout at me before going to get the doctor.
 

[Read more...]

Stephanie
Mom to Amelia Rose
Died on March 10th, 2010, born on March 11th, 2010
Lost to Mosaicism, a rare form of Turner’s Syndrome
Strattford, CT
After a rough transition from the south to New England, we found out about baby number four in June 2009. We were  thrille​d to welcome a new life into our family. With much anticipatio​n and delight, I endured the rough first trimester and finally felt that I was in the fun part of pregnancy. We had found a midwife and began planning a home birth.

During my 24th week, our midwife explained that I was measuring larger then I should and she asked us to get an ultrasound to rule out twins. I was so excited about the possibility of twins, but also very aware that other problems could be the result of measuring larger. So, we waited for our ultrasound appointment.

[Read more...]


Cassie
Mom to Sophia Rene
Died March 11th, 2008 and was born with her surviving twin sister, Mya, on June 30th, 2008
Monrovia, CA

Every one of us has a story. Mine is that I am a mother of twins, Sophia Rene (twin A) and Mya Quinn (twin B).
On November 21, 2008 I could not sleep. I got up and took a pregnancy test and there it was “PREGNANT.” I quickly woke up my husband Eddie to show him. We were so excited. I already had a doctors appointment that morning for my flu shot and I had my doctor confirm we were indeed pregnant. That night we told our parents. The following day we hosted 45 family members at our home for Thanksgiving, and how thankful we were that day.

[Read more...]

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