FB_IMG_1526650178943 (1)

Trista

Mom to Audrina Marie

March 23, 2018

Rice, Minnesota

On November 24th, 2017, I found out my ultimate dream was coming true. In April, Aaron and I would welcome a daughter into our family. I can’t describe in words the joy I felt in that moment the ultrasound tech told me it was a girl. A thousand dreams flooded my mind…. little girl dresses, tea time and tiaras, tutu’s, pig tails, ponies, ballet slippers, mother daughter excursions like baking or going to the craft fair the list just goes on. The next day which happened to be Thanksgiving, I woke up feeling extra blessed. We were so excited to share the amazing news with our family on such a fitting day. The next week or so we spent living on cloud nine while imagining how our lives would soon change as we welcomed our daughter, Audrina Marie into the world.

Monday, December 4th, it all came crashing down on us. My level two ultrasound revealed a few markers for skeletal dysplasia. The ultrasound tech said, “it looks like a lethal type of dwarfism.” I jumped out of my skin and into shock. This can’t be real, I’m in a nightmare and I just need to wake up. I can’t even process the information. Doctors refer us to specialists at Abbott Northwest to get a second opinion. We stayed hopeful for two days and then our hearts dropped after meeting with specialists in the cities. Doctors seemed to confirm what St. Cloud had found and suggested we do an amniocentesis. We moved forward quickly hoping to get some answers.

The next month was an emotional roller-coaster from hell. We remained hopeful that Audrina would prove the Doctors wrong. We prayed, oh god did we ever pray. I tried to keep the faith and imagine her with us despite what the experts were saying. Our faith train fizzled out after receiving the most heartbreaking news with the genetic counselor at Abbott Northwest. The results from our amniocentesis came back positive identifying the FGFR3 genetic mutation code consistent with the diagnosis for Thanatophoric Dysplasia. Our worst nightmare.

The condition would mean our baby girl would likely die of respiratory failure at birth. Even now after months of processing and grieving, I still cry at the thought of meeting her and feeling so helpless knowing I have to let her go. I know the next few months are going to be tough, and even harder after we have to say goodbye. Right now, all I can do is enjoy her kicking inside me, and love her while she is here with me. Inside there, she is safe, loved and free of all harm. She is a blessing regardless of the situation I face. Even though it would be so easy to be angry with God, I can only thank him for giving me a daughter. Audrina Marie, my angel baby. My dream really did come true, just in a different way. We will still love her for a lifetime. Even though her time here on earth will be short, our love for her will be eternal. [Read more…]

http://facesofloss.com/2018/05/8625.html

Megan

Mom to Baby Christian

Born on January 27, 2012

Died on January 24, 2012

Mooresville, North Carolina

It’s hard to even believe what has happened in the past few weeks, but I’ve been told it could be therapeutic to share my story.  I know how much it’s helped me reading other people’s stories, so here goes. [Read more…]

http://facesofloss.com/2012/02/4710.html

Cortney

Mom to Malach

Born and died September 17, 2007

Kalamazoo, Michigan

It all started with a positive pregnancy test as most pregnancies do. I was excited! We weren’t trying, but what are you going to do? I always wanted to be a mom and even though I was only 19 at the time I knew I could do it. My boyfriend was 25 at the time. It was our first child together. Everything about my pregnancy was normal. I got very lucky I didn’t have any morning sickness or any of the bad pregnancy symptoms. [Read more…]

http://facesofloss.com/2012/02/4683.html

Lisa

Luke Hudson, January 19, 2011

 Baby Hays, July 5, 2011

Austin, TX

 

I am the face of Thanatophoric Dysplasia and Early Miscarriage

It’s so difficult to share the story of loss.  No words seem to do it justice.  Here’s my attempt.

In the fall of 2010 we learned I was pregnant after nine months of trying for our second child. The pregnancy progressed just as nicely as the first. But, 19 weeks into our pregnancy, everything changed. [Read more…]

http://facesofloss.com/2011/12/4297.html

 

Jennifer
Mom to Ryan James
September 17th, 2010
Fort Worth, Texas

March 25, 2010, there were two pink lines and then on another test the word “pregnant”. After taking 3 different tests, I allowed myself to be excited! My husband and I had struggled to get pregnant with our oldest child, so I was shocked to be pregnant within 3 months. The plan was for this pregnancy to complete our family of four.  [Read more…]

http://facesofloss.com/2011/03/751.html

© 2011 Faces of Loss, Faces of Hope | PO Box 26131 | Minneapolis, MN 55426 | Contact Us