Sharon

Mom to John Thomas Chatham III

Born on March 23, 2009

Became an angel on April 4, 2009

Marietta, Georgia

When I was pregnant, I began to acquire too much fluid in the womb. They were not able to locate all of his heart parts on ultrasound which concerned them that he might have a heart defect. My water ruptured prior to 34 weeks but fully broke at 34 weeks. When he was born he was gray and not breathing due to the CHARGE-associated nasal problem. His heart also had a valve that was twisted. We were expecting at least two surgeries. He had a small penis and malformed ear as well. These are all symptoms that are grouped under CHARGE Syndrome. We waited for over a week for a bed at the local children’s specialized hospital and were very hopeful when he got moved. [Read more…]

http://facesofloss.com/2012/02/4752.html

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