During my 24th week, our midwife explained that I was measuring larger then I should and she asked us to get an ultrasound to rule out twins. I was so excited about the possibility of twins, but also very aware that other problems could be the result of measuring larger. So, we waited for our ultrasound appointment.
During the appointment I told the tech that we didn’t want to know the sex of the baby. She did extensive measurements and made the appropriate small talk. But I instinctively felt something was wrong. As I contacted our midwife after the appointment and she informed me that there was indeed something irregular that was found and that a level 2 ultrasound was called for. So, the panic began. The week between ultrasounds was the longest week in my life. We had some ideas of what to expect…all terrible possibilities, but until the next ultrasound, all we could do was wait.
A week later, the level 2 ultrasound confirmed that we had a baby girl who had multiple congenital anomalies that were incompatible with life. She was diagnosed with Hypoplastic Left Heart Syndrome, Cystic Hygroma, and Hydrops Fetalis. We were told right there that we had a 99% chance of her being born still and a 1% chance of her being born alive. I believe that the doctor said that she had a close to 0% chance of surviving at all. They believe she has a disorder called Turner’s syndrome. This is a chromosomal disorder where a part of the 46th pair of x chromosomes is missing or damaged. It is not hereditary.
We began to arm ourselves with information in order to make the best possible choices for our daughter. Parenting her is a privledge and our focus is on making Amelia’s life all about love.
I yelled for Steven, who was outside cutting down trees in preparation for Amelia’s memorial garden, and told him that she had not moved since the morning and that we needed to go the midwives to hear her heartbeat. This was around 4 pm. I called and spoke to Elyse who told us to take our time and come when we could. We arranged for a neighbor to watch the kids until another friend could come. I told our children that I had not felt Amelia and that we would be going to the hospital to hear her and that she may be born this day. I also had Steven grab the suitcase (that I had packed over 3 months ago) just in case.
When we were ready, we began to talk about what needed to happen next. We decided to have an induction that evening. Steven began to call our families as well as the many people who would need to know.
Upon our arrival, we were solemnly greeted and ushered upstairs to the labor and birth floor. I was so grateful that the group at ‘admitting’ must have been told about us because they never said anything congratulatory ~ just ‘Follow me please.’
It began with meeting our nurse (Alyssa) and waiting on Linda our midwife. As soon as Linda, our midwife, entered the room, we embraced and I began to cry. This was not to be our joyful birth ~ the one we prayed for seeing her alive. This was going to be the birth that I had to be strong enough to get through, knowing that my baby was already gone; knowing our ‘hello’ would be overshadowed by out ‘goodbye.’
The room was dark except for the electric candles we had brought which gave off a small flicker of light. It was quiet and peaceful. Those moments that I lay in bed feeling the contractions slowly build were amazing. Steven had taped positive affirmation notes all around the room that I had made so during my labor I could see these powerful words and gain strength for the birth. The one I saw was taped on the bed rail. It simply said ‘open’. I kept repeating this over and over again in my head as a contraction would come.
At some point, I decided that I was uncomfortable in bed and that I didn’t want to be in labor alone anymore. I awoke both Kim and Steven and told them that I didn’t want anyone else around yet (meaning a midwife). I wanted just them, music, darkness, and a birth ball. Steven was sitting on the end of the bed as I was rocking on the ball and I reached out, gripping his hands during contractions. I would lean against him and press my forehead to his. All during my labor, I was in my head thinking of my dear friend Debbie Hull (who attended all of my births in TX). I kept telling myself the things I remembered her saying to me during my labors with Aiden, Oliver, and Marin. Things like ‘down and out’ ‘relax you jaw’ ‘ open’ ‘breath down’.
As labor increased it intensity, Linda came in and asked me if I wanted to be on the bed. I said ‘yes’ and climbed on all four and held on for dear life to the head of the bed. I remember someone saying ‘this is not BIGGER than you’ and I immediately agreed. I think that I asked (probably loudly) for someone to check me. Linda or Elyse (because by this time both were there) and said that I was almost there. I started pushing. I had been pushing a bit while on the ball, thinking that it felt good to be pushing. I remember feeling very alone, staring at the hospital wall, while everyone else was behind me. And, in all honesty, I was alone. I realized with crystalline clarity that ONLY I could do this for Amelia. ONLY I could have planned this birth for her. ONLY I could push her body into this world, while knowing that her spirit had already left me. Only me.
I had help turning over and said immediately, “I want my baby.” Amelia was placed upon my belly and I cradled her in my arms, unaware that she was still inside the amnion. During the course of the last week, my water must have been absorbed, and due to Amelia’s condition ~ not replaced. Amelia was born in the ‘caul’ {the amnion membrane that holds the amniotic fluid and the baby and usually breaks before birth}. There was no hole in the amniotic sack and after I held her, Steven had to unwrap Amelia from the protective bubble that surrounded her after she entered into this world. The only hands to ever hold Amelia were Steven’s and mine.
We decided that it was time for our three children to meet their sister. Steven called Patti and asked her to bring the kids to the hospital. Then he made the call to Jim, the Now I Lay Me Down To Sleep photographer. We had hoped that we would have pictures of our whole family with Amelia, but Jim had to leave just minutes before our children arrived.














Stephanie, after reading your blog for months, I LOVED reading your story from start to finish. Amelia was so loved, so beautiful!